Create a personal or team page and help raise funds for research, education, and better care in Canada.

How to Join the "Stand Up for Spinal CSF Leak Patients" Campaign

✅ Step 1: Visit the Campaign Page

Go to our official fundraising campaign page on CanadaHelps: Campaign Link HERE

✅ Step 2: Choose How You Want to Participate

You’ll see 3 options:

  • Join a Team

If someone you know has already created a team, click this to join their group fundraising efforts.

  • Create a Team

Want to rally your own group? Choose this to become a team captain and invite friends, family, or colleagues to join.

  • Join as an Individual

Prefer to fundraise solo? This is your best option — you’ll get your own personalized fundraising page!

✅ Step 3: Sign Up & Customize Your PageStep

You’ll be asked to:

  • Create an account or log in to CanadaHelps

  • Add your name or team name

  • Set a fundraising goal

  • Write a short message about why this cause matters to you (you can use our samples below)

“I am fundraising for Spinal CSF Leak Canada to fund research, education, and advocate for better access to diagnosis and treatment for Canadians suffering from spinal cerebrospinal fluid (CSF) leak .

This cause is deeply personal to me (describe why). Spinal CSF leak is a disabling but underrecognized neurological condition. It causes intense, disabling symptoms including positional head pain (partial or complete relief when lying down and worsening considerably when upright), cognitive difficulties, and many other highly disabling neurological symptoms that can take away a person’s ability to work, care for loved ones, or even sit or stand upright. Many patients wait years for a diagnosis and face countless barriers to getting proper care.

Please help me reach my fundraising goal and bring hope to Canadians living with this condition.”

“We are Team [Name], and we are fundraising for Spinal CSF Leak Canada to support research, education, and advocate for better access to diagnosis and treatment for patients living with spinal cerebrospinal fluid (CSF) leak.

Spinal CSF leak is a disabling but underrecognized neurological condition. It causes intense, disabling symptoms including positional head pain (partial or complete relief when lying down and worsening considerably when upright), cognitive difficulties, and many other highly disabling neurological symptoms that can take away a person’s ability to work, care for loved ones, or even sit or stand upright. Many patients wait years for a diagnosis and face countless barriers to getting proper care.

Join our team or donate to help us reach our goal — every step helps someone get their life back.”

📌 Tip: Add a photo to personalize your page and inspire others to give.

✅ Step 4: Share Your Page

Once your page is live:

  • Share your fundraising page link with friends, family, and colleagues.

  • Post on social media, send emails, and tell your story!

  • Use hashtags like: #StandUpForALeaker #StandUpAgain #SpinalCSFLeak #SpinalCSFLeakAwareness

✅ Need Help?

If you run into any issues or need support, email us at:

📩 info@spinalcsfleakcanada.ca

🎯 Fundraising Tips

You’ve signed up to fundraise — now what?

Congratulations! By joining our “Stand Up for Spinal CSF Leak Patients” campaign, you’ve taken the first step. Here’s how to take it further and reach your goal!

🔧 Step 1: Optimize Your Fundraising Page

Before asking for donations, take time to personalize your page.

✅ Set a clear goal.

Choose an achievable but inspiring amount, and adjust it if you exceed it.

✅ Pick a catchy page name.

Add a personal touch or a call to action like “Help Us Heal” or “Stand Up for Spinal CSF Leak Patients.”

✅ Add a photo or video.

Show that this cause truly matters to you.

✅ Share your story.

Explain why you’re participating and what this cause means to you.

✅ Make the first donation.

It’s a powerful way to encourage others to give.

📣 Step 2: Share, Talk, Inspire!

✅ Send a personal message.

Reach out to friends and family by email, text, or social media. Share the link to your fundraising page.

✅ Use social media.

Post photos, videos, and updates. Tell people about spinal CSF leak and how your campaign can make a difference.

✅ Create mini-challenges.

Example: “If I reach $500, I’ll post a funny photo!”

✅ Add the link to your email signature.

A subtle but effective reminder.

✅ Suggest donations instead of gifts.

Birthday or special event coming up? Ask for donations in lieu of presents.

✅ Do a final push.

A reminder the day before or on the last day can help you cross the finish line.

💜Step 3: Thank Your Donors

Send a thank-you note to everyone who gave.

💡 Need Help?

Email us at 📩 info@spinalcsfleakcanada.ca